Support

Vitiligo can be very difficult to live with emotionally - it involves a change in appearance which is unpredictable and outside of our control.  People who have vitiligo need support and the Vitiligo Society has produced a set of eBooklets to help those affected by the condition…

Just Diagnosed?  is a guide for people who have recently been diagnosed. It deals with some of the initial questions it is likely they will be asking and also includes advice about seeing the doctor.

Living with Vitiligo – a positive approach suggests practical steps people can take to manage their condition by thinking, behaving and feeling more positive.  In particular, it offers ideas about dealing with difficult situations and the reactions of other people.

Emotional Support is aimed at people who are experiencing distress and concentrates on the emotional aspects of having vitiligo.

Guide for Parents and Carers offers advice about talking to children about vitiligo, helping them to develop their confidence and deal with difficulties, including bullying.

Guide for 7-11-year-olds explains what vitiligo is and what the children can say about it to others.  It aims to help parents/carers discuss the condition with them.

Guide for 12-15-year-olds suggests ways of coping with the condition, recognising that physical appearance is particularly significant at this time.  The importance of talking about feelings is emphasised.

Guide for Schools about Vitiligo provides information that schools can give pupils about the condition.  It also suggests how schools can support children who have the condition.

DOWNLOAD YOUR SPECIAL EDITION OF DISPATCHES

FEATURING THE MOST RECENT RESEARCH NEWS ON VITILIGO

 

CONTENTS  (32 pages)

  • Vitiligo Myths: Debunking or validating popular conceptions
  • Significant New Findings on Gene Research. (Professor Dorothy Bennett) 2010
  • Does vitiligo confer skin cancer    protection?
  • World Congress on Vitiligo 2010.
  • Camouflage and vitiligo.
  • Top ten uncertainties in the treatment of vitiligo. (UKDCTN)
  • Survey of medications and treatments conducted by Vitiligo Society.2011
  • Bordeaux conference on pigment cell research.2011
  • What is the Koebner Phenomenon?
  • Research updates 2012.
  • Genetic advances in vitiligo research. (Professor Richard Spritz)
  • Link between vitiligo and eye colour.
  • What’s new in treatment and research 2013. (Professor David Gawkrodger)
  • Could this protein be an effective treatment for vitiligo?
  • Genes and vitiligo: an update (Professor Dorothy Bennett)

 

 

To download a free copy of this publication:
Click Here

 

 

 


 

 

 

 

 

 

 

 

 

 

 

In this section of the website, you will find information in the following areas:

  • Treatments available, those available on the NHS and treatments available elsewhere.
  • Advice on suncare, how to prevent sunburn.
  • Camouflage products, how to use them and where to get help with them.
  • Nutrition advice on keeping your skin healthy.
  • Support to help you deal with the emotional aspects of having vitiligo.

There are also 15 illustrated eBooklets for you to read or download if you wish:
 

Vitiligo Facts:

  • What is Vitiligo?

Treatments:

  • Making decisions about available treatments,
  • Guidelines given to doctors.

Living with Vitiligo:

  • Just diagnosed?
  • A positive approach,
  • Emotional support.

Managing Vitiligo:

  • Suncare,
  • Skin Camouflage,
  • Other Products and Processes
  • Nutrition,
  • Vitamin D – further information.

Young People:

  • Guide for Parents and Carers,
  • Guide for 7-11 year-olds,
  • Guide for 12-15 year-olds,
  • Guide for Schools.